Hereditary Breast and Ovarian Cancer Resources

Hereditary Breast and Ovarian Cancer

WEBSITES

FORCE: Facing Our Risk of Cancer Empowered
www.facingourrisk.org

Hereditary Breast and Ovarian Cancer Foundation
www.hboc.ca

HBOC Society of Alberta
www.hbocsociety.org

Familial Breast Cancer Research Unit
Women's College Research Institute
www.womensresearch.ca/our-research/cancers-common-in-women/familial-breast-cancer-research-unit

OTHER ONLINE RESOURCES

High Risk
Living Beyond Breast Cancer
lbbc.org/Audiences/High-Risk

BRCA1 and BRCA2 Hereditary Breast/Ovarian Cancer
GeneReviews – National Institutes of Health
www.ncbi.nlm.nih.gov/bookshelf/br.fcgi?book=gene&part=brca1

BRCA1 and BRCA2: Cancer Risk and Genetic Testing
National Cancer Institute
www.cancer.gov/cancertopics/factsheet/risk/brca

Breast Cancer
Genetics Home Reference
ghr.nlm.nih.gov/condition=breastcancer

FOR JEWISH WOMEN

Jacob International
www.jacobintl.org

Sharsheret
www.sharsheret.org

Chicago Center for Jewish Genetic Disorders
www.jewishgeneticscenter.org

OVARIAN CANCER

Ovarian Cancer Canada
www.ovariancancer.org

Management Options for Women with a Hereditary Predisposition to Ovarian Cancer
Cancer Care Ontario
www.cancercare.on.ca/common/pages/UserFile.aspx?fileId=14096

OTHER CANCERS

Other Cancer Risks
FORCE
www.facingourrisk.org/risk_management/other_cancer_risks.html

PROPHYLACTIC MASTECTOMY

Mastectomy
www.facingourrisk.org/risk_management/mastectomy.html

Prophylactic Mastectomy: Breast Cancer Prevention for High-Risk Women
Mayo Clinic
www.mayoclinic.com/health/prophylactic-mastectomy/WO00060

Preventive Mastectomy: Questions and Answers
National Cancer Institute
www.cancer.gov/cancertopics/factsheet/Therapy/preventive-mastectomy

Prophylactic Mastectomy
Breastcancer.org
www.breastcancer.org/treatment/surgery/prophylactic_mast.jsp

Risk-Reducing Breast Surgery - Prophylactic Mastectomy
Macmillan Cancer Support
www.macmillan.org.uk/Cancerinformation/Causesriskfactors/Genetics/Risk-reducingbreastsurgery/Risk-reducingbreastsurgery.aspx

PROPHYLACTIC OOPHORECTOMY / HYSTERECTOMY

Oophorectomy
FORCE: Facing Our Risk of Cancer Empowered
www.facingourrisk.org/risk_management/oophorectomy.html

Prophylactic Oophorectomy: Preventing Cancer by Surgically Removing Your Ovaries
Mayo Clinic
www.mayoclinic.com/health/breast-cancer/WO00095

HysterSisters
www.hystersisters.com

CHEMOPREVENTION

Chemoprevention and Breast Cancer
FORCE: Facing Our Risk of Cancer Empowered
www.facingourrisk.org/risk_management/chemoprevention_breast_cancer.html

Chemoprevention and Ovarian Cancer
FORCE: Facing Our Risk of Cancer Empowered
www.facingourrisk.org/risk_management/chemoprevention_ovarian_cancer.html

Chemoprevention: Drugs That Can Reduce Breast Cancer Risk
Mayo Clinic
www.mayoclinic.com/health/breast-cancer/WO00092

Medicines to Reduce Breast Cancer Risk
American Cancer Society
www.cancer.org/Cancer/BreastCancer/MoreInformation/MedicinestoReduceBreastCancer/index

Tamoxifen and Raloxifene for the Prevention of Breast Cancer
UptoDate
www.uptodate.com/patients/content/topic.do?topicKey=~3RkRGSmwhqwH

ONLINE COMMUNITY SUPPORT

Willow-talk
www.willow.org/community/login

FORCE
www.facingourrisk.org/FORCE_community/message_board.html

Be Bright Pink
www.bebrightpink.com/forum

High Risk Women
Breastcancer.org
community.breastcancer.org/forum/47

BOOKS

Confronting Hereditary Breast and Ovarian Cancer: Identify Your Risk, Understand Your Options, Change Your Destiny, by Sue Friedman, Rebecca Sutphen and Kathy Steligo (Johns Hopkins University Press, 2012)

Prophylactic Mastectomy: Insights from Women Who Chose to Reduce Their Risk, by Andrea Farkas Patenaude (Praeger, 2012)

Previvors: Facing the Breast Cancer Gene and Making Life-Changing Decisions, by Dina Roth Port (Avery Trade, 2010)

Positive Results: Making the Best Decisions When You're at High Risk of Breast or Ovarian Cancer, by Joi L. Morris and Ora Karp Gordon (Prometheus, 2010)

Pieces of Me, by Veronica Neave (Hegemony Press, 2011)

What We Have: A Family's Inspiring Story About Love, Loss, and Survival, by Amy Boesky (Gotham, 2010)

Eating Pomegranates: A Memoir of Mothers, Daughters, and the Breast Cancer Gene, by Sarah Gabriel (Doubleday, 2009)

Pretty Is What Changes: Impossible Choices, the Breast Cancer Gene, and How I Defied My Destiny, by Jessica Queller (Spiegel & Grau, 2008)

Blood Matters: From Inherited Illness to Designer Babies, How the World and I Found Ourselves in the Future of the Gene, by Masha Gessen (Harcourt, 2008)

Apron Strings: Inheriting Courage, Wisdom and... Breast Cancer, by Diane Tropea Greene. (Rainbow Books, 2007)

FILMS

In the Family, directed by Joanna Rudnick (Kartemquin Films, 2008)
http://inthefamily.kartemquin.com