Posted January 17, 2009 By doubledaria
I'm a mets breast cancer survivor and would like to connect with other mets survivors.
Please create a post here so we can connect or link to my cancer blog.
Look forward to making contact,
Daria
http://daria-livingwithcancer.blogspot.com/
Posted April 13, 2009 By SusanSusannah
hey daria. I too have mets to the spine. my life is an entirely different place now.
helps to communicate with others like me. where are you?
sincerely, susan
Posted April 14, 2009 By frostbite
Hi - I'm a metagirl too. Spread into spine (t9, 10 & 11). It is very helpful to talk with other women who are meta too - it's like we're in a totally different part of cancerland. I don't even like the term survivor anymore since that just won't be the case for me. However, I've already made it to 51 months and the prognosis was an average survival rate of 18-24 months...SO THERE!
Is anyone else here on Herceptin?
Inspire.com is based in the states but has a discussion group for Advanced Breast Cancer which is also very good and active. It's been quite helpful for me at least.
Posted December 29, 2009 By cbooth
This is good to here. I am a mets girl too. I had breast cancer in 2003, Estrogen positive with no lymph nodes affected. Recently I have been diagnosed with mets in the spine (9 lesions). It was caught early as the result of a bone scan taken for a painful shoulder. I still cannot accept the diagnosis.
On top of that the bone biopsy was unsuccessful so I must rely on MRI & CT Scans for proof of the diagnosis.
I just finished 10 rounds of radiation, and have had my second shot of Lupron to push me into menopause. I'm also getting monthly IV of Pamidronate, though I am switching to Zometa in the hopes there are less side affects.
I need some help and I am hoping one of you ladies can share your experience in this regard. I would like to know if removing the ovaries is a better solution then taking Lupron with its side effects for the next several years. What do you think?
Cherylyn
Posted June 15, 2009 By vern
Hi I'm a mets cancer survivor also been fighting for 19 years, on and off. Mine is in the lymph nodes neck and underarm. start chemo again
2weeks now for small tumors on my breast. nice to find people to communicate with.jamigirl2@hotmail.com
Posted November 26, 2009 By Anna
Dear Vern,
I am quite overwhelmed to hear you say that you have been battling breast cancer mets for 19 years. Could you add a little more, as your story would be inspirational to me and, though I will not speak for the others, possibly all of us who are coping with this.
Anna
Posted June 21, 2009 By OneStrongLady
Hello,
I, too, have BC mets. Unfortunately, I am triple negative, so only can do chemo. Have been on Xeloda for nine months with good results and great quality of life.
I hope this chat site is a big success.
Posted October 31, 2009 By Patti Lou
Great to hear your quality of life is good. What else would you advise my Mom to try. She had chemo after her mastectomy (July 2008) for 3 treatments (Sept, Oct. & Nov. 2008) and felt good but it has moved as of September 2009 into her liver, spine and ribs.
Her doctor is unsure chemo will work and our family is searching for other treatment to help her battle.
Thanks for your help.
PL
Posted October 6, 2009 By docnibbles
Hi all,
My oncologist thinks I have mets in my liver, lung and rib cage. Due to other health probs I can't do chemo or radiation so am only on Femara.
Would love to communicate with others who live in this world of uncertainty.
Cheers, docnibbles
Posted October 31, 2009 By Patti Lou
Best wishes in your fight. My Mom is triple negative and her cancer has moved into her ribs, liver and spine. She's looking for other treatment than chemo since her doctor feels the chemo didn't really work and it has reoccurred.
What else are you trying?
We live in Ontario. Thanks for your advice.
PL
Posted October 10, 2009 By Serenity
Hi. I too have mets( I just learned this word as I am new here tonight) to the spine ( D1, D2.etc). Originally diagnosed with Breast cancer in 2004 lumpectomy; lymph nodes affected; HER2 positive. Did 6 rounds of chemo then; radiation; and Herceptin for a year. I went to the emergency room with back/chest pain in August 2008 and was told it was muscular. 2nd opinion concurred.By January, 2009 went on sick leave as I couldn't cope. Dr. finally did a scan in March,2009 and found tumours on my spine one that had pushed through the bone.They did 5 rounds of radiation and I will be having my 9th chemo ( Taxatere) on Wednesday as well as Herceptin and Aridia. I was wearing a collar from April to August 24/24 but now am using it mostly when I walk. I had been a very active person before but now am limited to walking and sneak in some yoga ( simple poses).They do not seem to want to talk about operations but I am hoping that something can be done.Anybody know of any new research, maybe bone fusing, etc. I am living in Gaspe, Quebec. Love to you all.
oine
Posted October 10, 2009 By docnibbles
Hi again everyone. Since my first post in which I indicated my oncologist thinks I have BC mets in several places, I have learned that there is question as to whether the rib cage mets are not that at all--but a second primary. My oncologist says there is no way to differentiate the two without a biopsy but my reading of the literature says differently. Right now I am trying to find out if my 8 rib fractures are due to a primary CA or BC mets and am getting little support. Does anyone have experience with this or suggestions as to what I can pursue? Many thanks.
Hope everyone has a good Thanksgiving.
Cheers, docnibbles
Posted November 28, 2009 By Annaf
Hello everyone. I was first diagnosed with breast cancer in 1997 and it came back three years ago. It was landed in my lungs and femara controlled it well but suddenly, all hell broke lose this past summer. Now there are mets in my spine, liver and skull. I was on 6 rounds of Xeloda which did not work and ten days ago, I had my first Taxotere which knocked my white count to very low and made me felt like just been run over by a big truck. Need to talk to someone.
Posted January 6, 2010 By Carolyn
Has anybody suggested Zometa for the bone mets?
Posted February 4, 2010 By Margrit
Hi, I was diagnosed with breast cancer Aug '09. First of Dec it was confirmed that I have mets to the thoracic spine I have been on arimedix and a monthly IV of promidronate. So far the side effects only feel like I have the flu after the IV. The sore joints are worse at night. There is also some concern about mets to the lung, the leasons were to small when noticed on MRT in Sept, having more MRI's the end of March. Going to be a long two months.
I was happy to hear about Anne, a 19 year surviver. That sounds encouraging
Posted March 15, 2011 By Bonnie Atkins
Hi
I have just been diagnosed with bone cancer. I'm 46. I was originally diagnosed in 2005 (age 41) when my son was 6 months old. I had surgery (lumectomy with lymph node disection) followed by chemo and 25 +5 radiation. then onto tamoxifan. In 2008 I had a "localized" recurrence and had a mastectomy with TRAM flap reconstruction. Just before Christmas, I was skating with my son. I twisted and apparently destroyed my sternum. Will be starting pomadronate(?) on March 25, having an oopherectomy on April 12 with a change of daily med.
I'm so scared. Can anyone offer some encouragement.
Posted October 5, 2010 By andrea joe
I need to talk with someone,a survivor! Iam 27 yrs old with 2 kids. Iam scared,i need help!
Posted December 5, 2010 By miscmom4
Physically you think how I am going to do this, but Mentally how AM I going to get through this is hard. I hope you have a good support group, family, friends, church, doctors etc. When you ask for help it's really amazing who will come through for you. I am 40, we went thru 7 chemo rounds, 8 1/2 months of nursing care and now our "Normal" which includes going to for different meds every 3rd and 4th week. Make this your families "Normal". I am in Manitoba where we have AWESOME doctors, nurses etc. I hope and pray you are in a good place.
Hope to hear from you soon.
Bette
